Comments on: Amorfix nearing finish line with vCJD test http://biotuesdays.com/2009/10/06/amorfix-nearing-finish-line-with-vcjd-test/ This is the tagline Wed, 01 Feb 2012 18:36:24 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: Janelle Bissell http://biotuesdays.com/2009/10/06/amorfix-nearing-finish-line-with-vcjd-test/comment-page-1/#comment-19 Janelle Bissell Sun, 01 Nov 2009 10:27:39 +0000 http://biotuesdays.com/?p=5#comment-19 Hi, interesting post. I have been pondering this issue,so thanks for sharing. I will certainly be subscribing to your blog. Keep up the good work Hi, interesting post. I have been pondering this issue,so thanks for sharing. I will certainly be subscribing to your blog. Keep up the good work

]]> By: christine lord http://biotuesdays.com/2009/10/06/amorfix-nearing-finish-line-with-vcjd-test/comment-page-1/#comment-12 christine lord Wed, 21 Oct 2009 17:24:59 +0000 http://biotuesdays.com/?p=5#comment-12 -------------------------------------------------------------------------------- Tuesday 20th October 2009 Next week on Tuesday 27th October I and other families who have lost a loved one to vCJD will be attending the public meeting of SABTO. The committee of Safety of Blood, Tissue and Organs who advises the government on blood safety issues including vCJD. This years meeting is taking place at the Royal Horticultural Conference Centre, Victoria, London SW1P 2DQ at 2pm. As well as myself and other grieving families, haemophiliacs and other individuals who have been exposed to blood products from donors that went on to die of vCJD will also be represented. Thousands of haemophiliacs and people with blood clotting difficulties were exposed to blood products that put them ‘at risk’ of developing vCJD in the future. These people’s lives (many of them were young children) have been devastated. I will be there representing my Andrew all victims of vCJD and also supporting the safety and health of the UK public. As a mum who has lost a beloved son to vCJD my only agenda is responsibility, honesty, transparency and the fact we need to keep our blood supply safe and free of vCJD. This years meeting concentrates on donor selection, where prospective donors are turned down for a variety of reasons, including age, sexual history and medical concerns. At present there is no donor selection for vCJD, despite blood screening tests being available in Europe. This means that more lives will be lost due to people contracting vCJD through blood products in the UK. I will be voicing these concerns and many more at the SABTO meeting next week and will keep you posted regarding the outcome of the meeting. -------------------------------------------------------------------------------- ——————————————————————————–
Tuesday 20th October 2009

Next week on Tuesday 27th October I and other families who have lost a loved one to vCJD will be attending the public meeting of SABTO. The committee of Safety of Blood, Tissue and Organs who advises the government on blood safety issues including vCJD.

This years meeting is taking place at the Royal Horticultural Conference Centre, Victoria, London SW1P 2DQ at 2pm.

As well as myself and other grieving families, haemophiliacs and other individuals who have been exposed to blood products from donors that went on to die of vCJD will also be represented. Thousands of haemophiliacs and people with blood clotting difficulties were exposed to blood products that put them ‘at risk’ of developing vCJD in the future.

These people’s lives (many of them were young children) have been devastated.

I will be there representing my Andrew all victims of vCJD and also supporting the safety and health of the UK public. As a mum who has lost a beloved son to vCJD my only agenda is responsibility, honesty, transparency and the fact we need to keep our blood supply safe and free of vCJD.

This years meeting concentrates on donor selection, where prospective donors are turned down for a variety of reasons, including age, sexual history and medical concerns.

At present there is no donor selection for vCJD, despite blood screening tests being available in Europe. This means that more lives will be lost due to people contracting vCJD through blood products in the UK.

I will be voicing these concerns and many more at the SABTO meeting next week and will keep you posted regarding the outcome of the meeting.

——————————————————————————–

]]> By: Lisa Farrant http://biotuesdays.com/2009/10/06/amorfix-nearing-finish-line-with-vcjd-test/comment-page-1/#comment-6 Lisa Farrant Wed, 07 Oct 2009 09:49:36 +0000 http://biotuesdays.com/?p=5#comment-6 My Grandmother, Audrey, died of CJD in June 2007, 6 months after she first became ill. She gave blood twice a year throughout her life at a local blood donation clinic. She obviously did not know that she carried CJD and so will have inevitably passed this horrid disease onto other unknowning people! If the Amorfix test was available at the time, my Grandma's blood would never have been allowed to enter into our blood donation supplies and go on to infect yet more people. These people will not know either that they carry CJD and so the cycle carries on! In my opinion the Amorfix test could not be introduced in the UK and around the world soon enough. This is vital in preventing many others contracting CJD unnecessarily. I hope to one day say that I have helped prevent another innocent person from dying from this disease, I would not wish it on my worst enemy! My Grandmother, Audrey, died of CJD in June 2007, 6 months after she first became ill. She gave blood twice a year throughout her life at a local blood donation clinic. She obviously did not know that she carried CJD and so will have inevitably passed this horrid disease onto other unknowning people! If the Amorfix test was available at the time, my Grandma’s blood would never have been allowed to enter into our blood donation supplies and go on to infect yet more people. These people will not know either that they carry CJD and so the cycle carries on!

In my opinion the Amorfix test could not be introduced in the UK and around the world soon enough. This is vital in preventing many others contracting CJD unnecessarily.

I hope to one day say that I have helped prevent another innocent person from dying from this disease, I would not wish it on my worst enemy!

]]> By: christine lord http://biotuesdays.com/2009/10/06/amorfix-nearing-finish-line-with-vcjd-test/comment-page-1/#comment-4 christine lord Tue, 06 Oct 2009 14:14:14 +0000 http://biotuesdays.com/?p=5#comment-4 I lost my son to vCJD in the UK on 16th December 2007 Andrew was just 24 years old. As a freelance journalist and a bereaved mum I launched the campaign 'justice for andy' www.justiceforandy.com to investigate the scandal of bse and to prevent other people dying needlessly like my Andrew. With millions of hits on the website and thousands of ongoing emails from affected families and concerned people around the globe, vcjd has not gone away and continues to kill on a regular basis. Click on to the home page and watch the bbc1 documentary I produced about my Andrews last days which highlights the horror and reality of suffering from vCJD. The easiest way to transmit the rogue prions that cause vcjd is intravenous and screening of all donated blood is essential to prevent futher deaths and to protect future generations. With an incubation period of up to 50 years and 'one in a thousand of the uk population possibly carrying the disease' screening of donated blood products should be a priority for the UK govenment and all governments. Please log on to the website to offer your support or information. Lives can be saved......join me in the 'campaign for blood safety' so that another mother doesnt have to face the heartbreak I do every day....loosing a beloved child to an avoidable disease.....vcjd... ..Christine Lord justiceforandy.com I lost my son to vCJD in the UK on 16th December 2007 Andrew was just 24 years old. As a freelance journalist and a bereaved mum I launched the campaign ‘justice for andy’ http://www.justiceforandy.com to investigate the scandal of bse and to prevent other people dying needlessly like my Andrew. With millions of hits on the website and thousands of ongoing emails from affected families and concerned people around the globe, vcjd has not gone away and continues to kill on a regular basis. Click on to the home page and watch the bbc1 documentary I produced about my Andrews last days which highlights the horror and reality of suffering from vCJD.

The easiest way to transmit the rogue prions that cause vcjd is intravenous and screening of all donated blood is essential to prevent futher deaths and to protect future generations. With an incubation period of up to 50 years and ‘one in a thousand of the uk population possibly carrying the disease’ screening of donated blood products should be a priority for the UK govenment and all governments.

Please log on to the website to offer your support or information.
Lives can be saved……join me in the ‘campaign for blood safety’ so that another mother doesnt have to face the heartbreak I do every day….loosing a beloved child to an avoidable disease…..vcjd… ..Christine Lord justiceforandy.com

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